2024-03-28T11:50:45Z
https://tsukuba.repo.nii.ac.jp/oai
oai:tsukuba.repo.nii.ac.jp:00056048
2022-04-27T09:31:13Z
2780:3056
3:62:5596:3055
Quality of life and associated factors in siblings of children with severe motor and intellectual disabilities : A cross-sectional study
涌水, 理恵
ワキミズ, リエ
WAKIMIZU, Rie
FUJIOKA, Hiroshi
NISHIGAKI, Kaori
MATSUZAWA, Akemi
children with disabilities
family
empowerment
Japan
quality of life
siblings
This study examined quality of life and its associated factors in siblings of children with severe motor and intellectual disabilities in Japan. The participants were 789 siblings of children with a disability and their primary caregivers. We used the Kinder Lebensqualität Fragebogen questionnaire to assess the quality of life of siblings. The mean age of the siblings was 12.21 ± 3.07 years, and the mean quality of life score
was 69.63 ± 12.55 points, which is higher than that of the general population of children of the same age. It was revealed that the following factors contributed to higher quality of life scores: a closer relationship with the child with a disability, younger age, the primary caregiver's lower care burden, later birth order of siblings (i.e., younger siblings), higher family empowerment, and female gender of siblings.
The relationship with the child with a disability had the strongest influence on siblings' quality of life. Our study suggests the need for nursing interventions that focus on the whole family to enhance siblings' quality of life.
journal article
Wiley Publishing
2020-09-20
application/pdf
Nursing & Health Sciences
12755
12755
1442-2018
AA11457626
https://tsukuba.repo.nii.ac.jp/record/56048/files/NHS_12755.pdf
eng
10.1111/nhs.12755
© 2020 John Wiley & Sons Australia, Ltd., This is the peer reviewed version of the following article: Nursing & Health Sciences 12755, which has been published in final form at 10.1111/nhs.12755. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.